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Original Article

IMJ. 2016; 8(1): 24-27


PSYCHO-SOCIAL AND ECONOMIC IMPACT OF THALASSEMIA MAJOR ON PATIENTS' FAMILIES

KAMRAN ISHFAQ, SALMAN BIN NAEEM, TANVEER AHMAD, SAFIA ZAINAB.




Abstract

STUDY DESIGN: A cross sectional study.
PLACE AND DURATION: The study was conducted in the Thalassemia Centre, The Children's Hospital & the Institute of Child Health
Multan (CH&ICH) from 1st March 2015 to 28th July 2015.
METHODOLOGY: The data was collected from the 500 registered Thalassemia major patients' parents who visited Thalassemia Centre
of the Children's Hospital & the Institute of Child Health Multan (CH&ICH). The structured interview was used as a tool for data
collection with the help of convenient sampling. Written and verbal informed consent was obtained from the parents. Data was
analyzed and interpreted by using the Statistical Package for Social Sciences (SPSS) 20.0 version software. The structured interview
was discussed with two senior doctors (>8 years' experience) working in the Thalassemia Centers and public health institutions. It was
revised to incorporate the recommendations and improvements. Descriptive and inferential statistics were applied to analyze the
data which include: frequency, percent, mean, standard deviation.
RESULTS: A total number of 500 thalassemia major patients' parents were recruited in this study who visited to the Thalassemia
Centre, The Children's Hospital & the Institute of Child Health Multan for the treatment of their children. The majority of the
respondents were mothers (76.2%) while (23.8%) of the respondents were fathers. Of the 500 respondents majority of the parents
were belonging to the Saraiki background (43.0%), Urdu (21.6%), Balouchi (19.0%), Sindhi (0.6%), Pathan (5.8%) and Punjabi (5.8%).
Grater part of the respondents were unemployed (31.6%), while (14.0%) were businessmen, (24.0%) were private jobs, (4.0%) were
doing Government Jobs and immense part of the respondents were laborers (26.4%). The monthly income of about (59.12 %) of the
respondents was below PKR 10,000.
CONCLUSIONS: A substantial number of parents have psycho-social and economic problems due to the thalassemia disease of their
child. The study summarized that the parents of thalassemia major patients and the general public should be sensitized in this regard.
Thalassemia prevention program should be introduced to minimize the burden of Thalassemia major patients' parents.

Key words: Psycho-social, Economic, Impact, Thalassemia Major, Patients, Families.






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