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Original Article



AN INVESTIGATION OF FACTORS AFFECTING QUALITY OF LIFE IN PARENTS OF CHRONICALLY DISABLED CHILDREN

İlker ERSİN, Eylem TÜTÜN YÜMİN, Şule AYDIN TÜRKOĞLU.




Abstract
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Aim: The study's first objective is to compare differences between fathers and mothers with and without chronically disabled children. The study's second objective is to analyze factors influencing the quality of life of mothers and fathers with chronically disabled children comprehensively.
Materials and Methods: One hundred sixty parents, 48 mothers and 22 fathers with chronically disabled children, 45 mothers and 45 fathers without chronically disabled children, participated in the research. Data collection was performed by employing the Nottingham Health Profile (NHP), Beck Depression Inventory (BDI), Parenting Stress Index (PSI), Fatigue Severity Scale, Headache Impact Test (HIT), and Pittsburgh Sleep Quality Index (PSQI).
Results: The childcare-related workload, HIT, NHP, BDI, and PSQI values of the mothers in the study group were significantly higher than those of the fathers in the study group, and the BDI and PSQI values of the mothers in the control group were significantly higher compared to the fathers in the control group (p

Key words: Cerebral Palsy; Chronic Disability; Disabled Child; Parent; Quality of Life






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