The purpose of the study, the results of which are presented in the article is the analysis of the organization and provision of medical services to patients (children) with primary immunodeficiencies. Object of research – the quality of medical services to patients (children) with primary immunodeficiencies. Subject of research – the conditions necessary for quality medical services for patients with primary immunodeficiencies (children). The authors, using the results of the analysis of theoretical literature and legal acts, reveal some of the characteristics of medical services for patients – children with primary immunodeficiencies: legal, organizational aspects, as well as such additional provision of quality medical services as drug coverage. Identify issues that impede quality medical services for patients with primary immunodeficiencies. The theoretical conclusions made by authors supported by analysis of the situation on provision of medical services to patients (children) with primary immunodeficiencies in the Sverdlovsk region, as well as the results of the survey of satisfaction with medical services for patients with inborn errors of immunity. The authors also underline the link between quality of care and social aspects of life (visit to the municipal nurseries, kindergartens and schools). The practical significance of the study is to develop recommendations for improving the quality of organization and provision of medical services to patients with diseases associated with primary immune deficiencies.
medical services, quality, patients with primary immunodeficiencies, legal, social aspects